Monday, June 23, 2014

How Many Emergencies Can I Cram Into 24 Hours?

Crapola!  Did I really just see that happen?

I was pulling into the grocery store parking lot and a lady rolled out of the driver's side door of the truck driving in front of me!  She scraped her side and bumped her head.  I immediately pulled over to see how she was (thank goodness I was driving slowly so I didn't run her over).   I assumed she had been pushed out due to some sort of domestic violence situation because, really, have you ever seen an adult roll out of a moving vehicle?

She was conscious, and the first thing she said was, " Did the truck stop?"

What?!?  She was in the truck alone and fell out?  I assumed there was a driver who would be taking off, but no.  I watched the truck continue through the parking lot and crash into another vehicle.  Thank heaven it didn't hit a pedestrian or an occupied vehicle.

I called 911 and tried to keep her calm.  Her head wasn't bleeding, but she also wasn't overly coherent.  I didn't know if it was because of a concussion, the fright of falling out of a moving vehicle, a cognitive issue, or a combo.  When the police and ambulance arrived, they also thought something was off and started asking about any alcohol or drugs, prescription medication, epilepsy, etc.  Then they saw a hospital band on her wrist and started asking about that while taking her to the ambulance.

I don't know what was going on with that situation, but she was so blessed to not have had more intensive injuries.  I'm hoping she'll be getting whatever help it is she needs.

Oh, and then to top off one of the most crazy 24 hours of my life, in the wee morning hours my baby girl ripped out her feeding tube, necessitating a call to the home health nurse to come to our home asap.

And then a few hours after that, my Veronica tripped in the church nursery and bashed her head by her eye on the table in there.  We took the blood-gushing girl to urgent care.  They decided to glue instead of stitches, but recommended a trip to the plastic surgeon in 6 months.

At this point, I am too exhausted to freak out.

Thursday, June 19, 2014

Unexpected Feeding Glitches for Juliet

So our new baby adventures have not quite turned out the way we thought they would.  Juliet has been having some struggles, hence the lack of time to post updates.

A basic summary of our first month with our sweet baby girl.  She was unable to gain weight initially.  Her three week weigh in showed that she was still significantly below her birth weight.  After several doctor and lactation appointments, the decision was made to switch to bottle feeding.  You know its not a great situation when the lactation consultant tells you to stop nursing.

Then from week 3 to week 4, she made huge progress when being bottle fed.  She gained one pound in a week.  We figured the main problem was over, we'd let her gain some weight, and switch back to nursing.  However the parenting roller coaster had a few more unexpected twists and hills.

She had a swallow study the day after we learned of her great weight gain.  This is a test where the baby drinks from a bottle with barium so specialists can watch the child in a live-action kind of x-ray.  It was immediately detected that Juliet has been aspirating many times every feeding, meaning she has been inhaling milk along with swallowing it.  We knew she choked sometimes, but it turns out she was also silently aspirating - meaning she was aspirating with no outward signs.

We were admitted to the hospital that day and an ng feeding tube was placed.  This is a feeding tube that runs from her nose to her stomach.  She seems to be tolerating the tube feedings and has been gaining weight.  The goal is that using the tube will give her throat and lungs a chance to heal and eventually she will be able to switch to thickened liquid from a bottle to nursing.

Since we can't confirm what is causing these issues, we don't know when she will no longer need the tube.  It could be weeks, months, or longer. 

The uncertainty is tough.  So is the round-the-clock pumping to provide her milk and maintain my supply in addition to the time spent on her feedings.  So is the triple-check system to make sure her tube is still properly placed every time before she eats to be sure that we don't accidentally pump her lungs full of fluid during exhausted middle-of-the-night feedings.

But, at least we have a game plan and a goal.  We know why she wasn't gaining weight and have a plan to address it.   We have a way of keeping her safe.  We have insurance.  We have access to excellent medical care.  We have family and friends that have been outstanding supports through all of this. 

And not to be overshadowed by these unexpected challenges, God has given us this incredibly sweet baby to love. 

My goodness that is one of the seven cutest kids I have ever seen.